Showing posts with label prosthesis. Show all posts
Showing posts with label prosthesis. Show all posts

Tuesday, May 10, 2016

Aquarium, Mother's Day

This past Thursday there was a little-known date on the Christian calendar, it was 40 days after Easter and according to the Bible it is the day that Jesus ascended to Heaven. For whatever reason the more conservative Mennonite churches celebrate this date, we have no school and (some) Mennonite owned businesses have a vacation day. We had a church service in the evening - we did not attend though.   We decided to visit the N.J. Adventure Aquarium. It was delightful, I didn't expect to see a hippo but I think they were a highlight. The ever-circling sharks were just a bit dangerous looking, but they say that he big sea turtles are the most dangerous to the divers.




The drive isn't too bad, but you do have to travel the wonderful Schuylkill Expressway.

It was also the day that Ezekiel and his senior class left for their class trip, he managed an e-mail at 36,000 ft. What won't they think of next? We haven't heard directly from him since, but the one chaperon has been sending out e-mail.

Then we invited the grandparents and Son#1 and his family to supper on Saturday evening. I was presented with  a mini-cheesecake tin with the removable bottoms so you can pop the little cake out of the tin, can't wait to use it!

Four Generations
We were missing one person on here (Parker's mommy)

We also finally got the paperwork so Joe can move one step forward toward the goal of driving.  We met with an OVR representative 3 weeks ago and we were approved for assistance. It will dramatically decrease our financial responsibility in paying for the adaptive driving evaluation and the installation of the needed equipment. The interview with the representative was painless, the most impressive thing was his ability to read an entire document upside-down! We had the benefit of the right-side-up side.

Last night Ben's truck finally decided to start! He had taken the old engine and seated the new engine just before he left for Thailand. Then it sat all winter while being a playground for squirrels. I wasn't sure it would be able to start. He put in a few Saturdays along with some help from a special young lady and then on Saturday night his oldest brother noticed a broken wire and a disconnected plug. He refastened the wire but still didn't find a place for the plug. It was definitely a learning experience.

Today I had one more meeting with the social worker and we tried to lay a plan of action for this summer. There would be use for one more part-time job around here.




While the moms solved the problems of the world in 3 hours, the little girls gave the kittens a see-saw ride (they're in that box) and slid them down a dirt pile and I think a ride in the stroller.

QOTD: "Can I have the tweezers, I want to pull out your leg hairs ."

Thursday, March 17, 2016

Getting a Driver's License

Haven't blogged about prosthesis in awhile. Haven't blogged much at all lately!  Not that life is so boring or anything, more like, I have to filter it so much there isn't much left.

My book stash might give you an idea about life:  "The Teen-age Brain- A Neuroscientist's survival guide to raising teens and adolescents " By Frances Jensen and Amy Ellis Nutt

The Road to Little Dribbling- The Adventures of an American in Britain  by Bill Bryson....
a cookbook entitled "Bake it Like You Mean It"

Oh and I'm halfway through a book called "Addicted to Life and Death"  written by a local paramedic, but I find her descriptions of things distasteful. Yeah we might talk about stuff after an ambulance call, but you don't need to write it in a book.

I might need help. Or maybe I need less screen time and more reading time?

I still like Qustodio if anyone is wondering, I didn't say my whole family likes Qustodio, but I do.

Anyway, back to getting a driver's license if your child wears bilateral (both legs) prosthesis,and has a  fist for his one hand... I couldn't find this stuff earlier when I did web searches, so maybe it will help someone.  When you go for your physical before you take your "knowledge test" (this is how we do it in PA) there are questions that refer to amputations, mental disabilities, or anything else that would make the patient have a problem driving safely.   Our doctor checked the boxes next to "amputations" and out next move was to take the knowledge test.
Taking a knowledge test is a very interesting event in our area. I have learned a long time ago, that I really do not enjoy taking my young children along because the wait is beyond their endurance. (What an understatement) I took some stitching with me,but found that the seating was so tight, I didn't want to run the risk of poking someone with a needle.  So I sat back and watched the people. I should have taken my tablet along and wrote some descriptive terms. People of all shapes and sizes, burly truck drivers renewing something on their commercial license, skinny little sixteen year olds nervously clutching papers, first-time-parents-of-sixteen-year-olds finding out they forgot the actual social security card, tiny little babies who cried, bored office workers trying to be patient.  The smells were interesting too.... I smelled garlic, onions, tobacco, pot, alcohol and other questionable scents.

Anyway, our hour of waiting was finally over and we made our way to the desk. "Joel" behind the desk was a relaxed man. He filled in the blanks that I had missed- height and social security number. Had Joseph sign his SS card. They looked over the form and realized that he needs a non-driver number. That information had to come from Harrisburg and of course those people were gone for the day.
Meanwhile, Joe took the questions and came back looking a bit upset. "The computer didn't work right! I selected one answer and it chose another, twice."  The supervisor told him that if he has trouble the next time he takes the questions, he needs to tell them right away and not try just go ahead.

No matter. I had to come back another day to get the proper numbers anyway.

We were able to get a "No Wait" ticket and were seen almost immediately the next day. He passed his questions and I got the "Learner's Permit". The trip home from DMV with this sixteen-year-old was not nearly as stressful as the first three times I did this trip.

Next step was to fill out a form from Office of Vocational Rehabilitaion (OVR), did you know that office existed? Neither did I.  Supposedly they can help us make this driver training stuff affordable. Having someone else teach your child to drive at $125 an hour (that was the lowest quote I've seen) is a bit over the budget. We are hoping to use Mumma's Driving School, but they've never worked with a person with three limbs affected and we may end up driving further for the evaluations.

Now we wait on an appointment with OVR and then they will send info to Mumma's and THEN maybe Joseph will sit behind a steering wheel.

Questions people have asked: "He walks so well, why can't he just drive?"  True he walks well, but prosthesis do not have ankle movement, try driving sometime without using your ankles. He also has no feeling in his "feet" and according to what I'm learning, you cannot use a prosthetic appliance to operate any part of the car.


QOTD: "Everyone is going to FL, but us! But we're the cool ones we don't have to pack." --brought to you by Shekinah     I know there were more quotables, but I can't remember.

Tomorrow I have a date with my hubby at lunch!

Thursday, April 25, 2013

When Your Foot Breaks

No, not mine. And no, not one made of bone.  It is made of carbon fiber and it didn't hurt when it broke, just made cracking sounds with each step.

Last evening Joseph told me that his left foot seems loose....now he's told me this differnt times over the 2-1/2 years I know him. Sometimes his foot actually falls off and other times he just needs to tie his shoe better.  So this time I ask for his leg without the shoe and did some wiggling.

Definitely something was a bit loose.

Sent some e-mails and left a phone message all the while thinking...if he needs a new foot

how long will it take

they don't keep these things in stock

he can't use crutches  ( when you can't hop on one foot and you only have  a left hand to hold the crutch...I think they would be a liability not a help)

Well maybe it's not so bad after all

Sent him to school in the AM with a note "no running until further notice"

This AM got a phone call "when can you come in?"  "now?" (as in 2-3 hours from now)

Changed my plans

Got gas, picked up the boy and the leg and off we went to Philadelphia.
Before I left I messaged my prayer partner and asked her to help me pray for this trip.
Dad had left his phone home in the charger, so I couldn't even tell him.

Enroute to school, I checked the Phila. traffic report
Oh yuck!  worse than usual

Then when I got on at the turnpike interchange  my EZ Pass  light said "Low Bal"  I really didn't know what that meant, but  I went on through....
Then I remembered that a couple months ago we had to get new credit cards cause some bozo tried to use them in MN...and we never gave the turnpike the new numbers!

So I stopped at one of the rest stops and called in so ...well I didn't know what happens when your account doesn't have enough money in it. I don't need any fines.  Got that straightened out

Finally arrived at Shriners only 45 min later than my estimate.  Our wonderful prosthesist got her team right on it...
they checked the foot and yeah, it was as bad as I thought...worse maybe...no he cannot wear the foot until they get in a new one.  We could overnight one and you would get it Sat or Mon, but then hubby needs to figure out how to put the new foot on and make sure it is right...this ain't no $5 piece of metal.
Then one of the team came out with a smile. We found a used foot in the back...same socket, only one size larger... will it fit in his shoe? 

It did, it worked  and the shoe fits!  It is a wonderful answer to prayer.

He has a good foot to use till the new foot comes in.

We made it home in time for him to get his last hour of school.


Hard question of the day:  Do you think my birth mother cried when she had to leave?

Wednesday, August 22, 2012

Cheetah Legs?


No kitties were harmed in the making of these new legs...there's tiger stripes on the inside!
His new legs are much narrower than the old ones.
Got his wish...new legs for school...only one pair of socks rather than the 3-1/2 pr required to keep the old ones in place.
TOMORROW.......SCHOOL!

Wednesday, November 16, 2011

New Legs

Today we finally got the long awaited new legs.


They fit wonderfully and there is a happy boy...he grew 5" in one day.

Please ignore the messy clothing room, there was people making a mess when I wasn't looking.

Tuesday, November 15, 2011

Heigh ho!

It's off to the city we go! We are scheduled to get new legs tomorrow!!
Please pray for safe driving and the heart of this young man...he has
great plans for those legs and none of it involves hard work or blisters.
I hope he is not disappointed.

Thursday, October 20, 2011

Guess What He Picked?

Yesterday Shriners told us that we can pick fabric for the outside AND
the inside of his new legs....so off to the fabric store. The
basketballs will be on the inside and the "wood" will be on the outside.
His brother told him to pick something that will make him happy when he
looks in his leg -before he puts it on....
And please pray for him and this splint thing...something is not working
right. We can barely get the splint back on at the end of the day. His
muscles are just so weak that his hand starts flopping back to the old
position after being out of the splint most of the day....we just can't
loose all that hard work!!
I have an e-mail waiting for the Dr in the AM

Wednesday, October 19, 2011

No Cast and Leg Fittings

I was almost concerned that Joseph would refuse to accompany me to his Phila visit this AM. He was so worried that it would hurt to take off the cast and that there would be blood.
Well this is what he saw when they removed the cast. Pic is a bit light...but no blood, just some dried out wrinkled skin.  The Dr's were so happy with his results...he is going to need to do the work from here on out.  Splint at night, and work the wrist during the day. I was a bit surprised we aren't doing PT, but we will see how "mom PT" goes. If we have too many crying evenings like tonite, I will be requesting PT by a professional.
 Thumb is still not in the right position, so we have another stint with the fixator in our future, but we will see if we can arrange it after next summer so that he can go swimming.



Then on to some socket fittings for his legs. He was cast 4 weeks ago and they were ready to try on the sockets. They temporarily attached the feet to see how they feel.

I have a video of him walking but it is sideways and I don't know how to right it! He did pretty  well and didn't use his favorite 4-letter word too often...(hurt)
Now we get to pick out some cool fabric to do the outside of his legs. I sort of talked him into it when I told him he can go to the fabric store and pick out whatever. (maybe I'd better clarify "whatever")  Maybe he will pick "skin" after all.

Thursday, January 20, 2011

New Feet!






Yesterday I reminded Joseph that he won't be going to school today and
he was disappointed until he remembered that it was "new feet day".

Let the pictures tell you the results....of course my battery only 
lasted for 3 shots ! but the pictures tell it...after some initial 
adjustments he loved them.
Now I do know they will take some getting used to there are some 
pressure spots, but he stands so much straighter!
 
The down-side? He needs to learn how to get up again if he falls.
So that will be fun to teach  and ..
 They made him stand 5' 3" and he really should be more 
like 4'11" not sure why but it makes him a bit of a smart alec!  he is 
only one inch shorter than mom.
 
Thankfully when he went on his rant about his haircut tonite, he had his 
feet off and I could talk to him as the little boy he actually is.

I met another bloggy mom today, so neat!  Anna, praying for your family 
tonite.