Friday, April 8, 2011

A Day at Shriner's

We had an appointment at 11 but I knew before hand that the Dr's were
going to be in surgery. The trick was to be able to catch both before
they raced off to their next duty.

By 1:30 we had eaten lunch and Faith and Joe had watched enough Mickey
Mouse Club to make up for the 6 month absence of TV.
FINALLY the 2 Dr's were free... If you don't like details....just quit now.


Well- we made a new plan of action....we will be doing the hand
first...external fixator sometime the beginning of June that will take
about 5 weeks to do its job. That job is to bring his fingers out of
hiding in the big scar that makes up his right hand.
Then July 28th we will be back to ....(sounds awful) remove the feet.
Hopefully if we need any skin grafting for the arm/hand they will be
able to do it with skin from the feet.

I did feel comfortable that the Dr's revisited the decision whether or
not it was the best idea to 'delete' the feet or to 'replace them into
correct anatomical position and fuse the ankles'

I don't think my active 11 y.o. son would do well with fused ankles.

He seems OK with the plan...he understood the conversation and had
talked about amputaion with his teacher earlier in the week.

It looks like it will be a VERY long summer.

2 comments:

  1. wow both at the same time! so he will have the external fixator? i was hoping natalie would have that to lengthen her arm but for now Dr. K is going to wait on it...you will get really familiar with driving to Philly this summer! I do agree that Joe will have much more mobility with the "new feet" and Dr. K will do wonders with his hand. Just look at Natalie's hand! how long will he be in the hospital?

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  2. The Lord gives us the particulars of our lives as opportunities to know Him in the midst of our challenges, and what a journey your son and all the rest of you are on. God's blessings and may each of you be aware of His place in all of this. I look forward to the updates.

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